If the only hope for your baby daughter lay in a brand-new experimental drug, would you want doctors to give it to her? What if she would be the first infant in the world to receive it?
In July 2013, 14-year-old Milan Gambhir – who had been a healthy child – was diagnosed with one of the most aggressive and incurable brain tumors: glioblastoma multiforme (GBM).
One mother shares why the palliative care program has become a staple in her whole family’s care plan.
When you are a kid and you’re sick, you go to the pediatrician. If you have a chronic medical condition, as in my case, you establish a team of pediatric specialists who can provide for your health issues on a consistent basis throughout your childhood.
What was meant to be a trip to Disneyland in late summer 2015 turned to tragedy. Now, more than a year following the horrible car accident that changed their lives forever, the Liu family of Beijing is bringing their little girl home.
Right after Astrea Li born, she went into cardiac arrest, not just once, but repeatedly. It was all her doctors at Lucile Packard Children’s Hospital Stanford could do just to keep her alive. Soon, a far-flung team of researchers joined together to solve the mystery of what was causing Astrea’s severe heart arrhythmia.
Stanford researchers recently published a scientific study describing how and why they’re trying to automate the diagnosis of rare genetic diseases.
We introduced Hana Yago a few months ago when she was awaiting a heart transplant. Today, the Yago family of San Francisco are one step closer home and leaps and bounds closer to their “new normal.”
“This is awesome!” Exclaimed nine-year-old Joshua Gomez, as he listened to his favorite song at his appointment at Stanford Children’s Health Ear Clinic in Palo Alto on July 21. “Awesome” because he is now able to hear it more clearly than ever before.
On the heels of his preschool graduation, 4-year-old Tyler Briend kicked off his summer vacation by traveling to Washington D.C. to speak with lawmakers about improving health care access for kids like him – patients living with complex medical conditions. Tyler, a patient at Lucile Packard Children’s Hospital Stanford, and his parents made the trip as part of Speak Now for Kids Family Advocacy Day, sponsored by the Children’s Hospital Association (CHA).
What would you do if your toddler had a very rare blood cancer and his treatments were failing? At what point would you decide that it was time to stop those treatments and make him as comfortable and happy as possible for whatever time he had left? That was the terrible decision faced by the parents of a young child with a form of leukemia so unusual and deadly that his doctors at Lucile Packard Children’s Hospital Stanford didn’t know if anyone had ever survived it.
When Elijah Olivas’s hand was severed in a car accident, dozens of experts from our pediatric trauma team coordinated to perform 20 hours of life- and limb-saving surgery.
April is Donate Life Month, and 14-year-old Sina Sulunga-Kahaialii of Hawaii is living proof that organ donation saves lives. She recently received a kidney transplant at our hospital due to chronic renal failure.
Thanks to the power of social media, Denver Broncos star Vernon Davis answers a cancer patient’s wish.
Linda Luna was five months pregnant with her first child when she got the bad news: Ultrasound scans showed a deadly defect in her baby boy’s heart. He had a 90 percent chance of dying before or just after birth. But thanks to a groundbreaking treatment at Lucile Packard Children’s Hospital Stanford, two-month-old baby Liam, who just went home to San Jose last week, is beating those odds.
Young, athletic girls like Aminah Carter, 8, are being treated for sports injuries typically associated with adults and professional athletes.
Dateline NBC presented their 2nd national broadcast looking at the personal and medical journey the Binghams have faced, along with the many challenges ahead.
What should have been one of their family’s happiest moments quickly turned somber as they feared the seriousness of Wyatt’s condition. The dermatology team suspected it could be a skin disease, but they couldn’t know for sure. Wyatt needed to be transferred to Lucile Packard Children’s Hospital Stanford.
Recently, the Loh family, originally from the Bay Area, was in town for their annual visit from Shanghai to check in with son Elliot’s care team. They reflected on the experience of traveling across the world to give their son the best treatment possible.
When Danah Jewett’s 5-year-old son, Dylan, was dying from a brain tumor in 2008, she wanted to know if there was anything her family could do to help other children who might someday face the same terrible diagnosis. Yes, said Dylan’s doctor, Michelle Monje, MD, PhD: Would you be willing to donate his tumor for cancer research after his death?
Children and teenagers with all kinds of chronic and serious conditions want normalcy in their lives, says pediatric psychologist Barbara Sourkes, PhD, who directs the palliative care program at Lucile Packard Children’s Hospital Stanford. Sourkes helps our patients and their families navigate the divide between living with a difficult diagnosis and simply being a kid. Here, she offers advice on how to help children who must “commute” back and forth between the medical world and their everyday lives.
The Wang family is truly one in a million.
Stanford recently launched the world’s first stem-cell based trial aimed at a devastating skin disease called epidermoloysis bullosa. Physicians from our dermatology team are trying to correct a faulty gene in the skin cells of patients with a severe form of the condition, which causes large, painful wounds and currently has no cure.
When Juniper French was born in April 2011, her mom had been pregnant for 23 weeks and 6 days – a little more than half of a typical 40-week pregnancy. Shortly before her birth, doctors had to try to explain the possible consequences of her very early arrival to her parents.
Our implantable cardioverter defibrillator team provides lifesaving support for young people like Reina Villarreal, who suffers from an abnormal heart rhythm.
Lauren Catron, 26, credits the specialists at the Pulmonary and Cystic Fibrosis Center at Lucile Packard Children’s Hospital Stanford for keeping her alive.
A Salinas teen faced a heart defect that could lead to sudden death, so our Heart Center leads the way in fixing a defect more common that most doctors realize.
Jordan Ervin, 6, had 26 areas of blood flow blockage from his heart to his lungs. Surgeon Frank Hanley repaired all of the blockages in one marathon surgery.
Doctors at Lucile Packard Children’s Hospital Stanford and Stanford Children’s Health have proven that cochlear implants in deaf children with developmental delay can help them from falling further behind their peers.
On Sunday, February 8, dozens of patient families with children that have congenital heart disease gathered to celebrate lives saved and CHD Awareness Week (2/7/15 – 2/14/15).
Less than one month after reading about “stealth surgery” online, Jennifer traveled cross-country for an innovative surgery that helped her turn the corner from a painful past toward a brighter future.
East Bay mom says she was told to consider terminating high-risk pregnancy, so she sought a 2nd opinion at Lucile Packard Children’s Hospital, where the baby was saved.
ABC 7’s Lilian Kim reports on heart transplant recipient Lizzie Johnson, 14, and her family, about receiving the ultimate gift for Christmas this year, a new heart and a second chance at life.
Thanks to a new Pediatric Interventional Radiology program at Stanford Children’s Health, the first of its kind in the Bay Area, kids can often forgo anesthesia and, in some cases, surgery for many of their treatments.
Dr. Gerald Grant and his neurosurgery team quickly and successfully treated Emily Zimmerman’s fast-growing brain tumor. “To have this level of care for our daughter is our greatest relief,” said mom.
Lizzy Craze, 32, is the only heart transplant recipient in America, and likely the world, to survive 30 years with the same donor heart she received as a toddler.
An incredible device originally developed in post-WWII Siberia helped 7-year-old Giana Brown straighten and lengthen her left leg by making small adjustments for more than six months.
A San Jose teen and wrestling champ has regained full function after a complex surgery on his leg and back.
When parents of baby Isla found out at 16 weeks of pregnancy that their baby had a heart defect, atrioventricular septal defect, or AVSD, they traveled from the UK to the US to get help from pediatric surgeon Dr. Frank Hanley and cardiologist Dr. Stafford Grady.
Siblings Dominic and Julia Faisca had a rare kidney disease that stunted their growth. Thanks to our top-ranked transplant teams, the kids are now back home in Hawaii and “growing like weeds,” according to their doctor.
The moment Vanessa Garcia of Hollister, Calif., was born in 1985, doctors knew that the two gaps in her top lip and the division of her upper gums would make it impossible for her to eat.
A Minnesota doctor diagnosed Katie Grace, now 12, with idiopathic pulmonary arterial hypertension “IPAH,” at only 5 years old, and didn’t expect her to live. But the spunky lover of swimming beat the odds of that diagnosis, and received a rare heart-lung transplant in June.
Doris Diaz battled with severe cystic fibrosis. After her double lung transplant, Doris is able to take deep breaths for the first time in her life.
A gastroenterologist diagnosed teen with a swallowing disorder in which tight muscle fibers in the lower esophagus prevent food and liquids from passing
Back home at the Tulkarem refugee camp in the West Bank, Palestine, 6-year-old Hadi Alkhadra has had to crawl or be carried by his parents his entire life.
In 2005 13-year-old Monica Datta joined several other young people in undergoing MRIs as part of a research study at Stanford University. Unlike everyone else, Datta’s unexpectedly revealed a spot in her brain that nobody had known about.
Elizabeth Rodriguez-Garcia was nearly six months pregnant when she arrived at a routine ultrasound in July 2013. It would be the first baby, a boy, for Elizabeth and her husband Salvador Alvarez.
A liver tumor for 5-year-old Finn might have required a transplant, but our doctors had a better plan.
Shelby Scott, age 10, has a lot in common with Stanford senior forward, Shelby Payne. Together, their examples give kids with type 1 diabetes hope for a very bright future.
Specialists from our Brain, Behavior and Neurosciences Center discuss the signs, symptoms and safest care for concussions—and why girls’ rates are rising.
13-year-old Jaden is finally migraine-free, thanks to collaboration between Packard Children’s and California Pacific Medical Center.
After years of treatment for acute lymphocytic leukemia, 12-year-old Grace Chen is disease-free and making her mark through her game.
The Finlen family of Salinas is feeling pretty lucky today. Their newborn triplets, born at… Read more »
This Wednesday, June 5, at 8 pm, Dateline NBC will present the fascinating story of the Bingham family’s medical journey at Packard Children’s. It should be one of Dateline’s most talked-about programs of the year.
To care for her daughter, Lori Vargas first had to care for herself: a diet and fitness regimen helped her qualify to be a living organ donor. She lost close to 40 pounds – and saved her daughter’s life.
In the history of Lucile Packard Children’s Hospital, Misty Blue Foster is remembered as a… Read more »
The first-ever “Kicking for Miracles” event, hosted by World Class Tae Kwon Do in San… Read more »
Karina Gomez’s daughter, Kassaundra, was born in 2002 with a rare and life-threatening cardiac abnormality. At just 2 days old, Packard heart surgeons attached a tiny pacemaker to one of the two lower chambers, or ventricles, of her heart. Five months later, it was replaced it with a more advanced device wired to both ventricles.
A kidney tumor sent Brandon to Packard Children’s when he was just 17 months old and a recurrence brought him back when he was 2. Today Brandon is a happy, healthy 11-year-old with no signs of cancer.
A year ago, Jon and Kristi Cannon feared their young son would never smile again…. Read more »
In jackets and ties, party dresses and heels, more than 125 young patients and their… Read more »
It’s been more than seven years since Cole Rossi was cured of a rare brain cancer. The tumor and therapy left him with low levels of growth hormone, double vision, and physical weakness. He remains on hormone treatment and gets MRIs twice a year. He sees an oncologist every six months and a neurologist every other year.
Noah Jackson was born without a voice. Because of a rare genetic disease, his airway… Read more »
Born with a congenital heart malformation, Maggie’s daughter, Grace, found her place in the hearts of the physicians, surgeons, nurses, and staff who helped her grow into a normal healthy childhood.
Ongoing chemotherapy means that 8-year-old Luke O’Moore of Los Gatos cannot take part in his beloved BMX races. So members of the northern California BMX community came together to organize an exciting pro-am racing series and fundraiser in his honor.
Katie Jo Shuman pitches for her school’s softball team, and loves basketball and soccer. She also has an artistic, entrepreneurial streak: One of her hobbies is designing and selling jewelry for good causes.
Caitlin Burns was born with an immune deficiency and pseudo-obstruction of the gastrointestinal tract, a life-threatening condition that prevents the normal movement of food through her intestines. Packard specialists have been caring for her since she was an infant.
With her graduation just around the corner, a new job, and plans for college in the fall, Megan Acaccia has a lot to celebrate.
But just a year ago, things did not look so bright for the 18-year-old San Jose native. At 5 feet 3 inches tall and weighing more than 300 pounds, Megan was morbidly obese. She was so bullied at school that she stayed at home for a month, and she suffered through bouts of vomiting, diarrhea, and night sweats. Requiring seven kinds of daily medications, she battled hypertension, arthritis, acid reflux, polycystic ovary syndrome, and obstructive sleep apnea—all a result of her excess weight.
In an extremely rare three-day series of transplants in May, three young adults received new hearts at the Children’s Heart Center at Packard Children’s, including an extraordinarily uncommon double-organ heart and liver transplant.
“There’s nothing like having a bond with someone else who knows exactly what you’re going through.”
Angelina and Angelica Sabuco are running around, making new friends, and looking forward to their 3rd birthday party in August—their first as two separate little girls. “That is a great birthday gift!” said their mother Ginady Sabuco. “They love to run around, go out, and play with other children now.” It’s hard to believe that a short while ago, these same two girls were struggling to even walk and faced an uncertain future.