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The diagnosis behind the diagnosis

In July 2013, 14-year-old Milan Gambhir – who had been a healthy child – was diagnosed with one of the most aggressive and incurable brain tumors: glioblastoma multiforme (GBM).

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Packard Children’s patient visits Capitol Hill to advocate for kids with complex medical conditions

On the heels of his preschool graduation, 4-year-old Tyler Briend kicked off his summer vacation by traveling to Washington D.C. to speak with lawmakers about improving health care access for kids like him – patients living with complex medical conditions. Tyler, a patient at Lucile Packard Children’s Hospital Stanford, and his parents made the trip as part of Speak Now for Kids Family Advocacy Day, sponsored by the Children’s Hospital Association (CHA).

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The mysterious story of a boy who survived a rare and deadly cancer

What would you do if your toddler had a very rare blood cancer and his treatments were failing? At what point would you decide that it was time to stop those treatments and make him as comfortable and happy as possible for whatever time he had left? That was the terrible decision faced by the parents of a young child with a form of leukemia so unusual and deadly that his doctors at Lucile Packard Children’s Hospital Stanford didn’t know if anyone had ever survived it.

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The power of organ donation

April is Donate Life Month, and 14-year-old Sina Sulunga-Kahaialii of Hawaii is living proof that organ donation saves lives. She recently received a kidney transplant at our hospital due to chronic renal failure.

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World-first treatment for rare heart defect saves baby born at Packard Children’s

Linda Luna was five months pregnant with her first child when she got the bad news: Ultrasound scans showed a deadly defect in her baby boy’s heart. He had a 90 percent chance of dying before or just after birth. But thanks to a groundbreaking treatment at Lucile Packard Children’s Hospital Stanford, two-month-old baby Liam, who just went home to San Jose last week, is beating those odds.

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What’s wrong with baby Wyatt?

What should have been one of their family’s happiest moments quickly turned somber as they feared the seriousness of Wyatt’s condition. The dermatology team suspected it could be a skin disease, but they couldn’t know for sure. Wyatt needed to be transferred to Lucile Packard Children’s Hospital Stanford.

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A family’s story changes the science of a rare tumor

When Danah Jewett’s 5-year-old son, Dylan, was dying from a brain tumor in 2008, she wanted to know if there was anything her family could do to help other children who might someday face the same terrible diagnosis. Yes, said Dylan’s doctor, Michelle Monje, MD, PhD: Would you be willing to donate his tumor for cancer research after his death?

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Missing out on “normal”: Advice from an expert on how to help kids with serious illnesses

Children and teenagers with all kinds of chronic and serious conditions want normalcy in their lives, says pediatric psychologist Barbara Sourkes, PhD, who directs the palliative care program at Lucile Packard Children’s Hospital Stanford. Sourkes helps our patients and their families navigate the divide between living with a difficult diagnosis and simply being a kid. Here, she offers advice on how to help children who must “commute” back and forth between the medical world and their everyday lives.

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A chance discovery, and a decision to wait

In 2005 13-year-old Monica Datta joined several other young people in undergoing MRIs as part of a research study at Stanford University. Unlike everyone else, Datta’s unexpectedly revealed a spot in her brain that nobody had known about.

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Dateline NBC Profiles Family’s Heart Journey

This Wednesday, June 5, at 8 pm, Dateline NBC will present the fascinating story of the Bingham family’s medical journey at Packard Children’s. It should be one of Dateline’s most talked-about programs of the year.

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From the Heart

Karina Gomez’s daughter, Kassaundra, was born in 2002 with a rare and life-threatening cardiac abnormality. At just 2 days old, Packard heart surgeons attached a tiny pacemaker to one of the two lower chambers, or ventricles, of her heart. Five months later, it was replaced it with a more advanced device wired to both ventricles.

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Balancing Care with Busy Boyhood

It’s been more than seven years since Cole Rossi was cured of a rare brain cancer. The tumor and therapy left him with low levels of growth hormone, double vision, and physical weakness. He remains on hormone treatment and gets MRIs twice a year. He sees an oncologist every six months and a neurologist every other year.

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My Packard Story: Maggie

Born with a congenital heart malformation, Maggie’s daughter, Grace, found her place in the hearts of the physicians, surgeons, nurses, and staff who helped her grow into a normal healthy childhood.

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Rooting for Luke

Ongoing chemotherapy means that 8-year-old Luke O’Moore of Los Gatos cannot take part in his beloved BMX races. So members of the northern California BMX community came together to organize an exciting pro-am racing series and fundraiser in his honor.

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A Rocky Start

Katie Jo Shuman pitches for her school’s softball team, and loves basketball and soccer. She also has an artistic, entrepreneurial streak: One of her hobbies is designing and selling jewelry for good causes.

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Appetite for Life

Caitlin Burns was born with an immune deficiency and pseudo-obstruction of the gastrointestinal tract, a life-threatening condition that prevents the normal movement of food through her intestines. Packard specialists have been caring for her since she was an infant.

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Less is More

With her graduation just around the corner, a new job, and plans for college in the fall, Megan Acaccia has a lot to celebrate.

But just a year ago, things did not look so bright for the 18-year-old San Jose native. At 5 feet 3 inches tall and weighing more than 300 pounds, Megan was morbidly obese. She was so bullied at school that she stayed at home for a month, and she suffered through bouts of vomiting, diarrhea, and night sweats. Requiring seven kinds of daily medications, she battled hypertension, arthritis, acid reflux, polycystic ovary syndrome, and obstructive sleep apnea—all a result of her excess weight.

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Three Days, Three Hearts

In an extremely rare three-day series of transplants in May, three young adults received new hearts at the Children’s Heart Center at Packard Children’s, including an extraordinarily uncommon double-organ heart and liver transplant.

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Two Separate Little Girls

Angelina and Angelica Sabuco are running around, making new friends, and looking forward to their 3rd birthday party in August—their first as two separate little girls. “That is a great birthday gift!” said their mother Ginady Sabuco. “They love to run around, go out, and play with other children now.” It’s hard to believe that a short while ago, these same two girls were struggling to even walk and faced an uncertain future.