Family of teen was told she couldn’t be saved, but doctors at Stanford Children’s Health offered solutions.
Posts Tagged with
Heart Center
Best Present Ever! New Heart for Baby’s First Birthday
Baby born with a very rare condition received expert care culminating with a heart transplant from one of the best heart teams in the country.
Boy Wrestles Tough Surgeries for Alagille Syndrome and Wins
A multidisciplinary approach pins down the best care for a complex, rare heart condition.
A Teenager Doesn’t Let a Serious Heart Condition Get Too Serious
Quick-witted teen gets treated for a rare genetic heart condition, and arrhythmia by one-of-a-kind cardiology team at Stanford Children’s Health.
A Teenager Tracks Down Treatment for an Unique Arrhythmia
An inquisitive teenager and a determined cardiologist work together to treat a rare type of pediatric arrhythmia which required a different approach.
Exceptional Lifelong Care for Congenital Heart Disease Takes a Trusted, Team Approach
Even successfully treated congenital heart defects require lifelong monitoring and specialized treatment.
New Hope for Children with Aortic Valve Disorders
Innovative Ozaki valve repair technique reverses heart failure and improves functioning.
Half a Heart and a Whole Lot of Spirit
Patient with rare heart disease thrives thanks to a fighting spirit and a highly knowledgeable care team.
Heart Monitoring Device Brings Comfort to New Parents
Not the youngest, but possibly the smallest baby in the nation to receive an ICD.
Helping Patients Dependent on Heart Devices Live Their Best Lives
Our hospital’s annual Connecting event provides education and support for patients and families coping with the psychological impacts of heart devices. This year’s well-being theme focused on music.
Rebounding from extraordinary challenges
When Ben Thornton wheeled onto the court for the Bay Area Outreach and Recreation Program’s youth wheelchair basketball West Coast Conference Championship at Stanford, it was a game he was certain to play with heart — the same heart, in fact, that he received at Lucile Packard Children’s Hospital Stanford nearly 12 years ago.
What the Winter Olympics and congenital heart disease have in common
Shaun White, three-time Olympic gold medalist was born with a rare heart condition comprised of four congenital heart defects. Seth Hollander, MD, explains.
Fit to Run: A rare heart procedure for Ziyan Liu
A rare heart support helped middle-schooler Ziyan Liu survive to transplant with a single ventricle heart.
A Valentine’s Day visit filled with heart
For Oakland Raiders cornerback TJ Carrie, Valentine’s Day has a special meaning – it is the anniversary of his open-heart surgery to repair what doctors describe as a one-in-a-million heart defect.
New documentary describes heart transplant family’s journey
On Saturday, MSNBC aired a two-hour documentary called “Heartbreak: Saving the Binghams”.
Stanford Virtual Heart featured at Oculus Connect 4
David Axelrod, MD attended the Oculus Connect 4 conference where he appeared as an expert on a panel about the applications of VR in healthcare.
Physician trainees test drive the Stanford Virtual Heart
Stanford University School of Medicine professors provide a unique boot camp for the next generation of cardiac specialists uses VR to teach complex heart anatomy.
Heart transplant for Gage Bingham
Early Wednesday morning, after 512 days on the transplant wait list, 8-year-old Gage Bingham became the third child in his family to receive a new heart.
Treating an overlooked heart condition
Marissa Eustaquio’s case was a mystery. After a strong recovery from heart surgery as a child, she’d been active for years, enjoying dancing, hula, gymnastics, running, and bike-riding.
A Family’s Journey
Joey was born with several congenital heart defects, including a large ventricular septal defect (VSD), severe Ebstein’s Anomaly, and a coarctation of his aorta.
Mystery solved: Researchers use genetic tools to diagnose young girl’s rare heart condition
Right after Astrea Li born, she went into cardiac arrest, not just once, but repeatedly. It was all her doctors at Lucile Packard Children’s Hospital Stanford could do just to keep her alive. Soon, a far-flung team of researchers joined together to solve the mystery of what was causing Astrea’s severe heart arrhythmia.
Patient Update: Hana’s busy being a happy toddler with her new heart
We introduced Hana Yago a few months ago when she was awaiting a heart transplant. Today, the Yago family of San Francisco are one step closer home and leaps and bounds closer to their “new normal.”
Packard Children’s patient visits Capitol Hill to advocate for kids with complex medical conditions
On the heels of his preschool graduation, 4-year-old Tyler Briend kicked off his summer vacation by traveling to Washington D.C. to speak with lawmakers about improving health care access for kids like him – patients living with complex medical conditions. Tyler, a patient at Lucile Packard Children’s Hospital Stanford, and his parents made the trip as part of Speak Now for Kids Family Advocacy Day, sponsored by the Children’s Hospital Association (CHA).
Implantable defibrillators treat irregular heart rhythms in kids
An implantable cardioverter defibrillator can help prevent the heart’s electrical system from malfunctioning — and help kids get their lives back.
Shaping a Brighter Future
In medicine we often refer to the “natural history of disease”— the normal course that a disease takes in an individual if no treatment occurs. In the case of congenital heart disease, the “natural history” was often death or, at best, survival with significant limitations. Fortunately, that history has changed.
Dateline NBC profiles Heart Center family at Lucile Packard Children’s Hospital Stanford
Dateline NBC presented their 2nd national broadcast looking at the personal and medical journey the Binghams have faced, along with the many challenges ahead.
Lucile Packard Children’s Hospital Stanford plans major expansion of its world-renowned Heart Center
Our hospital expansion, opening in summer 2017, will provide a launching pad for expanding and renovating the current hospital next door. This will include creating room to grow the nationally-ranked Pediatric Heart Center, which will premiere a new and larger space in 2018.
Kids with dangerous heart arrhythmias receive lifesaving support from high-tech, implantable devices at Stanford Children’s Health
Our implantable cardioverter defibrillator team provides lifesaving support for young people like Reina Villarreal, who suffers from an abnormal heart rhythm.
Teen’s rare congenital heart defect fixed at Stanford Children’s Health
A Salinas teen faced a heart defect that could lead to sudden death, so our Heart Center leads the way in fixing a defect more common that most doctors realize.
Illinois boy saved by super-surgeon
Jordan Ervin, 6, had 26 areas of blood flow blockage from his heart to his lungs. Surgeon Frank Hanley repaired all of the blockages in one marathon surgery.
Phoenix baby saved by heart surgery pioneer
Baby Jackson Lane’s heart problems were “about as dramatic as you can get.” Famed surgeon Dr. Frank Hanley and his team stepped in to save Jackson’s life. “We are just so lucky that we found Dr. Hanley and that our son fought for his life,” said mom Elyse.
A Heartfelt Valentine’s Party for CHD Awareness Week
On Sunday, February 8, dozens of patient families with children that have congenital heart disease gathered to celebrate lives saved and CHD Awareness Week (2/7/15 – 2/14/15).
Nurse coordinator at Stanford’s Adult Congenital Heart Program has the same disease as those she cares for
Christy Sillman is one of the many adult survivors needing lifelong, specialized treatment for her heart. Sillman brings special insights to her work as the nurse coordinator for the Adult Congenital Heart Program at Stanford.
Dateline NBC Profiles Family’s Heart Journey
This Wednesday, June 5, at 8 pm, Dateline NBC will present the fascinating story of the Bingham family’s medical journey at Packard Children’s. It should be one of Dateline’s most talked-about programs of the year.
From the Heart
Karina Gomez’s daughter, Kassaundra, was born in 2002 with a rare and life-threatening cardiac abnormality. At just 2 days old, Packard heart surgeons attached a tiny pacemaker to one of the two lower chambers, or ventricles, of her heart. Five months later, it was replaced it with a more advanced device wired to both ventricles.
