Parents Express Gratitude in a Heartbeat for the Strength of Stanford’s Pediatric Network
Child celebrates another “heart-aversary” after undergoing open-heart surgery nine years ago at only two months old.
Posts Tagged with
Heart Center
Honoring the ‘Miracle Days’ of Transplant Patients
Former patients and their families traveled from all over California to celebrate 50 years of pediatric heart transplants and 35 years of pediatric lung transplants at Stanford.
Transplant Recipient Celebrates Impressive 40-Year ‘Heart-Aversary’ in a Remarkable Year for Stanford
Woman achieves 40-year anniversary of heart transplant with the same donor heart.
Tween Misses Old Heart but Grateful for New One After Transplant
A multispecialty Stanford heart team takes heroic measures to ensure a good outcome for a complex heart transplant.
Ask Your Family About Heart Disease
Knowing what you may be carrying in your genes could literally save your or a family member’s life, including your child’s life.
Girl Faces Open-Heart Surgery With Strength, Humor, and Grace
Elodie was diagnosed with coarctation of the aorta—a rare heart defect that is present at birth but often does not create symptoms until later in life.
Patient Heading to the Rose Parade to Honor His Three ‘Angel Organ Donors’
Joseph Sanchez-Munoz is special. He has had three transplants—a kidney, liver and heart—at three different points in his life. And now, he’s honoring his donors on a national stage.
Santa’s Elf Brings Comfort and Cheer to Young Patients from the Heart
One of Santa’s favorite elf received a Berlin Heart, a ventricular assist device (VAD) that acts as an external heart pump attached by tubes, which sustains a child whose heart may be too weak to work on its own. Of course, this version was shrunk down to elf size.
PACT Team Says Yes to Passed-Over Donor Heart, Giving Young Man a Second Chance
Josh, a 24-year-old from Discovery Bay, California, has Danon disease—a rare genetic condition that weakens muscles in the body, along with the heart.
Getting to the Heart of a Rare Genetic Condition
A rare genetic condition meant a lot of uncertainty for an unborn baby. A multispecialty Stanford Medicine Children’s Health team came together to find answers.
Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins
Stanford fetal heart, heart surgery and CVICU teams come together to treat baby with uncommon heart defect.
Baby With Challenging Tetralogy of Fallot Grows Into Healthy Toddler
Stanford Children’s heart doctors perform unifocalization to repair Hayden’s toF with pulmonary atresia and MAPCAs.
Three Innovations Shorten Heart Transplant Patient’s Wait Time
It started as a simple persistent wet cough, something Eloise (Ellie) McCloskey’s mom, Aubrey, noticed before spring break of second grade, and it quickly escalated from there. After a week in the hospital and an echocardiogram and tests, the family received the news. Ellie had dilated cardiomyopathy—a disease of the heart muscle—and her heart was slowly failing.
A Joyful Pause for Premature Baby on Heart Transplant List
Sky Mattan Gopin is a miracle baby. He went from needing a heart transplant to near-normal heart function in just a few months’ time—without heart surgery.
Celebrating the Gift of Life and Her Donor’s Legacy Through Advocacy
A Stanford Medicine Children’s Health pediatric heart transplant patient is riding on the Donate Life Rose Parade float to raise awareness for organ donation. This is her story.
Down Syndrome Awareness Month
Stanford doctors provided specialized heart and ENT follow-up care for preschooler.
NICH Program Gives Parents of Medically-Complex Baby Wings to Fly
Novel Interventions in Children’s Healthcare (NICH) Program supports families of babies with chronic health needs.
Laughter and a Potts Shunt Are the Best Medicine for Boy With Severe Pulmonary Hypertension
Stanford Medicine Children’s Health gives kids with advanced pulmonary hypertension another option besides lung transplant.
Toddler Takes on Jungle Gym After Life-Changing Heart Reconstruction
Highly specialized Complex Biventricular Reconstruction Program offers exciting alternative for kids with single ventricle hearts.
Stanford Medicine Children’s Health Celebrates Women’s History Month: Enjoy the Journey
Elisabeth Martin, MD, and Raji Koppolu, NP, encourage those who are just starting their career to enjoy each step of the journey.
Groundbreaking Heart-Lung Procedure Gives Toddler a Chance at a Full Life
Novel heart-lung procedure gives toddler a chance at a full life. Heart team combines two highly complex specialties in an unique surgical procedure.
New Heart, New Chance for Young Man with Becker Muscular Dystrophy
Stanford doctors use uncommon practice to save Becker muscular dystrophy patient.
Feisty Micropreemie With Heart Defect Beats Incredible Odds
Smallest baby at Stanford Medicine Children’s Health to have heart stent placed for tetralogy of Fallot.
Resilient Teen Receives Stanford Medicine Children’s Health 500th Heart Transplant
Resilient teen becomes Stanford Medicine Children’s Health’s legendary 500th heart transplant.
What Parents of Children With Heart Disease Asked Us About COVID-19
COVID-19 is daunting for all parents, but even more so for parents of children with a heart condition.
Heart Surgery Averts Transplant and Turns Teen From Blue to Pink
Family of teen was told she couldn’t be saved, but doctors at Stanford Medicine Children’s Health offered solutions.
Best Present Ever! New Heart for Baby’s First Birthday
Baby born with a very rare condition received expert care culminating with a heart transplant from one of the best heart teams in the country.
Boy Wrestles Tough Surgeries for Alagille Syndrome and Wins
A multidisciplinary approach pins down the best care for a complex, rare heart condition.
A Teenager Doesn’t Let a Serious Heart Condition Get Too Serious
Quick-witted teen gets treated for a rare genetic heart condition, and arrhythmia by one-of-a-kind cardiology team at Stanford Medicine Children’s Health.
A Teenager Tracks Down Treatment for an Unique Arrhythmia
An inquisitive teenager and a determined cardiologist work together to treat a rare type of pediatric arrhythmia which required a different approach.
Exceptional Lifelong Care for Congenital Heart Disease Takes a Trusted, Team Approach
Even successfully treated congenital heart defects require lifelong monitoring and specialized treatment.
Thriving After A Devastating Heart Prognosis
A determined mom fights to find lifesaving treatment for her son’s Williams syndrome.
Heart Patients Bond Over Their Life-Saving Devices
Treating pediatric ICD patients and their parents through family-centered care.
New Hope for Children with Aortic Valve Disorders
Innovative Ozaki valve repair technique reverses heart failure and improves functioning.
Half a Heart and a Whole Lot of Spirit
Patient with rare heart disease thrives thanks to a fighting spirit and a highly knowledgeable care team.
Heart Monitoring Device Brings Comfort to New Parents
Not the youngest, but possibly the smallest baby in the nation to receive an ICD.
Helping Patients Dependent on Heart Devices Live Their Best Lives
Our hospital’s annual Connecting event provides education and support for patients and families coping with the psychological impacts of heart devices. This year’s well-being theme focused on music.
Rebounding from extraordinary challenges
When Ben Thornton wheeled onto the court for the Bay Area Outreach and Recreation Program’s youth wheelchair basketball West Coast Conference Championship at Stanford, it was a game he was certain to play with heart — the same heart, in fact, that he received at Lucile Packard Children’s Hospital Stanford nearly 12 years ago.
What the Winter Olympics and congenital heart disease have in common
Shaun White, three-time Olympic gold medalist was born with a rare heart condition comprised of four congenital heart defects. Seth Hollander, MD, explains.
Fit to Run: A rare heart procedure for Ziyan Liu
A rare heart support helped middle-schooler Ziyan Liu survive to transplant with a single ventricle heart.
A Valentine’s Day visit filled with heart
For Oakland Raiders cornerback TJ Carrie, Valentine’s Day has a special meaning – it is the anniversary of his open-heart surgery to repair what doctors describe as a one-in-a-million heart defect.
New documentary describes heart transplant family’s journey
On Saturday, MSNBC aired a two-hour documentary called “Heartbreak: Saving the Binghams”.
Stanford Virtual Heart featured at Oculus Connect 4
David Axelrod, MD attended the Oculus Connect 4 conference where he appeared as an expert on a panel about the applications of VR in healthcare.
Physician trainees test drive the Stanford Virtual Heart
Stanford University School of Medicine professors provide a unique boot camp for the next generation of cardiac specialists uses VR to teach complex heart anatomy.
Heart transplant for Gage Bingham
Early Wednesday morning, after 512 days on the transplant wait list, 8-year-old Gage Bingham became the third child in his family to receive a new heart.
Treating an overlooked heart condition
Marissa Eustaquio’s case was a mystery. After a strong recovery from heart surgery as a child, she’d been active for years, enjoying dancing, hula, gymnastics, running, and bike-riding.
A Family’s Journey
Joey was born with several congenital heart defects, including a large ventricular septal defect (VSD), severe Ebstein’s Anomaly, and a coarctation of his aorta.
Patient Update: Hana’s busy being a happy toddler with her new heart
We introduced Hana Yago a few months ago when she was awaiting a heart transplant. Today, the Yago family of San Francisco are one step closer home and leaps and bounds closer to their “new normal.”
Packard Children’s patient visits Capitol Hill to advocate for kids with complex medical conditions
On the heels of his preschool graduation, 4-year-old Tyler Briend kicked off his summer vacation by traveling to Washington D.C. to speak with lawmakers about improving health care access for kids like him – patients living with complex medical conditions. Tyler, a patient at Lucile Packard Children’s Hospital Stanford, and his parents made the trip as part of Speak Now for Kids Family Advocacy Day, sponsored by the Children’s Hospital Association (CHA).
Implantable defibrillators treat irregular heart rhythms in kids
An implantable cardioverter defibrillator can help prevent the heart’s electrical system from malfunctioning — and help kids get their lives back.
Works of Heart
Giving birth to her first child was a surreal experience for Tawny Aye — and not the way it is for most mothers.
Shaping a Brighter Future
In medicine we often refer to the “natural history of disease”— the normal course that a disease takes in an individual if no treatment occurs. In the case of congenital heart disease, the “natural history” was often death or, at best, survival with significant limitations. Fortunately, that history has changed.
Dateline NBC profiles Heart Center family at Lucile Packard Children’s Hospital Stanford
Dateline NBC presented their 2nd national broadcast looking at the personal and medical journey the Binghams have faced, along with the many challenges ahead.
Lucile Packard Children’s Hospital Stanford plans major expansion of its world-renowned Heart Center
Our hospital expansion, opening in summer 2017, will provide a launching pad for expanding and renovating the current hospital next door. This will include creating room to grow the nationally-ranked Pediatric Heart Center, which will premiere a new and larger space in 2018.
Kids with dangerous heart arrhythmias receive lifesaving support from high-tech, implantable devices at Stanford Medicine Children’s Health
Our implantable cardioverter defibrillator team provides lifesaving support for young people like Reina Villarreal, who suffers from an abnormal heart rhythm.
Teen’s rare congenital heart defect fixed at Stanford Medicine Children’s Health
A Salinas teen faced a heart defect that could lead to sudden death, so our Heart Center leads the way in fixing a defect more common that most doctors realize.
Illinois boy saved by super-surgeon
Jordan Ervin, 6, had 26 areas of blood flow blockage from his heart to his lungs. Surgeon Frank Hanley repaired all of the blockages in one marathon surgery.
Phoenix baby saved by heart surgery pioneer
Baby Jackson Lane’s heart problems were “about as dramatic as you can get.” Famed surgeon Dr. Frank Hanley and his team stepped in to save Jackson’s life. “We are just so lucky that we found Dr. Hanley and that our son fought for his life,” said mom Elyse.
A Heartfelt Valentine’s Party for CHD Awareness Week
On Sunday, February 8, dozens of patient families with children that have congenital heart disease gathered to celebrate lives saved and CHD Awareness Week (2/7/15 – 2/14/15).
5 Questions about Heart Murmurs with Pediatric Cardiologist Alaina Kipps, MD
When a child’s heart is not making the right sounds, it can make parents very nervous. Alaina Kipps, MD, pediatric cardiologist in our Heart Center, explains that it’s actually very common and usually not as scary as you would think.
Parents from the United Kingdom travelled over 5,000 miles to save daughter Isla’s heart
When parents of baby Isla found out at 16 weeks of pregnancy that their baby had a heart defect, atrioventricular septal defect, or AVSD, they traveled from the UK to the US to get help from pediatric surgeon Dr. Frank Hanley and cardiologist Dr. Stafford Grady.
Video Game Technology and Surgical Expertise Meet in Groundbreaking Tool at Stanford Medicine Children’s Health to Help Parents Understand Complex Heart Repair
One of the most complex birth defects of the heart—and one of the most challenging to repair—can now be easily understood through a groundbreaking, video-game-like graphic now available on the Stanford Medicine Children’s Health website. It’s the first in a series called “Moving Medicine: An Interactive 3-D Look at Conditions and Treatments.”
Nurse coordinator at Stanford’s Adult Congenital Heart Program has the same disease as those she cares for
Christy Sillman is one of the many adult survivors needing lifelong, specialized treatment for her heart. Sillman brings special insights to her work as the nurse coordinator for the Adult Congenital Heart Program at Stanford.
Rare heart-lung transplant allows 12-year-old girl to have a second chance at life
A Minnesota doctor diagnosed Katie Grace, now 12, with idiopathic pulmonary arterial hypertension “IPAH,” at only 5 years old, and didn’t expect her to live. But the spunky lover of swimming beat the odds of that diagnosis, and received a rare heart-lung transplant in June.
Dateline NBC Profiles Family’s Heart Journey
This Wednesday, June 5, at 8 pm, Dateline NBC will present the fascinating story of the Bingham family’s medical journey at Packard Children’s. It should be one of Dateline’s most talked-about programs of the year.
Pioneers of the Berlin Heart
For a child awaiting a heart transplant, the Berlin Heart offers a bridge to life. Packard Children’s helped bring this innovative device to pediatric patients in the United States, and achieved some of the early milestones for the most vulnerable patients.
From the Heart
Karina Gomez’s daughter, Kassaundra, was born in 2002 with a rare and life-threatening cardiac abnormality. At just 2 days old, Packard heart surgeons attached a tiny pacemaker to one of the two lower chambers, or ventricles, of her heart. Five months later, it was replaced it with a more advanced device wired to both ventricles.
Three Days, Three Hearts
In an extremely rare three-day series of transplants in May, three young adults received new hearts at the Children’s Heart Center at Packard Children’s, including an extraordinarily uncommon double-organ heart and liver transplant.
