Josh, a 24-year-old from Discovery Bay, California, has Danon disease—a rare genetic condition that weakens muscles in the body, along with the heart.
Posts Tagged with
heart transplant
Young Man Receives the Rare Gift of Three Transplants
Joseph Sanchez-Munoz is the only child who has ever received three transplants from us, each at a different time in his life.
Three Innovations Shorten Heart Transplant Patient’s Wait Time
It started as a simple persistent wet cough, something Eloise (Ellie) McCloskey’s mom, Aubrey, noticed before spring break of second grade, and it quickly escalated from there. After a week in the hospital and an echocardiogram and tests, the family received the news. Ellie had dilated cardiomyopathy—a disease of the heart muscle—and her heart was slowly failing.
Celebrating the Gift of Life and Her Donor’s Legacy Through Advocacy
A Stanford Medicine Children’s Health pediatric heart transplant patient is riding on the Donate Life Rose Parade float to raise awareness for organ donation. This is her story.
Groundbreaking Heart-Lung Procedure Gives Toddler a Chance at a Full Life
Stanford heart team combines two highly complex specialties in a novel PARplant procedure Santana Renchie… Read more »
New Heart, New Chance for Young Man with Becker Muscular Dystrophy
Stanford doctors use uncommon practice to save Becker muscular dystrophy patient.
Resilient Teen Receives Stanford Medicine Children’s Health 500th Heart Transplant
Resilient teen becomes Stanford Medicine Children’s Health’s legendary 500th heart transplant.
What Parents of Children With Heart Disease Asked Us About COVID-19
COVID-19 is daunting for all parents, but even more so for parents of children with a heart condition.
Lucile Packard Children’s Hospital Stanford Celebrates 30 Years of History
Since 1991, the hospital and health system have logged more than 6.1 million clinic visits, 2041 solid organ transplants, and 129,574 births.
Humbly but Persistently Working Toward a Superhuman Status
With his Stanford PACT team’s help, a young man reaches rare milestone by living with a VAD for 10 years.
Best Present Ever! New Heart for Baby’s First Birthday
Baby born with a very rare condition received expert care culminating with a heart transplant from one of the best heart teams in the country.
Packard Children’s Named One of Nation’s Most Innovative Children’s Hospitals
Lucile Packard Children’s Hospital Stanford has been named a Most Innovative Children’s Hospital by PARENTS Magazine.
Families of Heart Donor, Transplant Recipient Meet for the First Time
Hana, a heart patient at Packard Children’s, and her family meet the family of Leo, her heart donor.
Life Before and After Organ Transplant
Donate Life Month: Families share the challenges and victories of awaiting organ transplant.
From surviving to thriving – teen puts her mark on a major brand
Kirsten Brown is no ordinary teenager. This 16-year-old is a heart transplant patient, a stroke survivor – and a Nike patient-designer with a powerful message of hope and inspiration.
Athena’s story: Sharing her journey through transplant
In her own words, a transplant patient’s personal essay: “I am the girl with a history of restrictive cardiomyopathy.”
Seeking a better way to match donor hearts with children awaiting transplant
Doctors leverage 3D imaging software to expand the potential donor pool for children in need… Read more »
San Jose police officers deliver cheer to a patient awaiting heart transplant
“Bad boys, bad boys, whatcha gonna do…” The recognizable Cops theme song is going to… Read more »
San Francisco Giants Celebrate ‘Donate Life Day’
“Play Ball!!” Austin Salinas, age four, who is awaiting a kidney transplant at Packard Children’s, kicks off the annual Donate Life game with the SF Giants.
Rebounding from extraordinary challenges
When Ben Thornton wheeled onto the court for the Bay Area Outreach and Recreation Program’s youth wheelchair basketball West Coast Conference Championship at Stanford, it was a game he was certain to play with heart — the same heart, in fact, that he received at Lucile Packard Children’s Hospital Stanford nearly 12 years ago.
Fit to Run: A rare heart procedure for Ziyan Liu
A rare heart support helped middle-schooler Ziyan Liu survive to transplant with a single ventricle heart.
New documentary describes heart transplant family’s journey
On Saturday, MSNBC aired a two-hour documentary called “Heartbreak: Saving the Binghams”.
Heart transplant for Gage Bingham
Early Wednesday morning, after 512 days on the transplant wait list, 8-year-old Gage Bingham became the third child in his family to receive a new heart.
Living a full life on a VAD
The youngest of five kids in the Bingham family, 8-year-old Gage is the third of his siblings to suffer from a life-threatening heart failure condition known as dilated cardiomyopathy.
Patient Update: Hana’s busy being a happy toddler with her new heart
We introduced Hana Yago a few months ago when she was awaiting a heart transplant. Today, the Yago family of San Francisco are one step closer home and leaps and bounds closer to their “new normal.”
Five lifesaving organ transplants in 48 hours means a very busy weekend at Lucile Packard Children’s Hospital Stanford
“When something like this happens, we’re prepared,” said Carlos Esquivel, MD. “It really shows the depth of the institution and our transplant programs.”
Teen in Shasta Lake already got her present, the gift of life
ABC 7’s Lilian Kim reports on heart transplant recipient Lizzie Johnson, 14, and her family, about receiving the ultimate gift for Christmas this year, a new heart and a second chance at life.
Heart transplant recipient celebrates historic 30-year anniversary
Lizzy Craze, 32, is the only heart transplant recipient in America, and likely the world, to survive 30 years with the same donor heart she received as a toddler.
Pioneers of the Berlin Heart
For a child awaiting a heart transplant, the Berlin Heart offers a bridge to life. Packard Children’s helped bring this innovative device to pediatric patients in the United States, and achieved some of the early milestones for the most vulnerable patients.
Three Days, Three Hearts
In an extremely rare three-day series of transplants in May, three young adults received new hearts at the Children’s Heart Center at Packard Children’s, including an extraordinarily uncommon double-organ heart and liver transplant.
