Claire has cystic fibrosis, but new treatments that attack the disease at the genetic level are helping her live a full life.
Posts Tagged with
cystic fibrosis
Mallory’s Legacy—Living with Optimism and Cystic Fibrosis
Stanford University graduate and cystic fibrosis patient Mallory Smith lived life vibrantly until her death at age 25. She left behind a memoir, “Salt in My Soul – An Unfinished Life,” that reveals much about hope, love, care and chronic illness.
Rare disease day: PCD looks like cystic fibrosis, but isn’t
Today, on Rare Disease Day, we’re focusing on a lung condition that can be just as… Read more »
New cystic fibrosis screening test developed at Stanford
Stanford researchers have invented a new technique to detect cystic fibrosis in infants. The test, described in a paper published today in The Journal of Molecular Diagnostics, is more comprehensive, faster and cheaper than current newborn screening methods.
Cystic fibrosis is deadlier for Hispanic patients, Stanford study finds
A new Stanford study of all kids in California diagnosed with cystic fibrosis between 1991 and 2010 shows that Hispanic patients were three times as likely to die from the disease as their non-Hispanic counterparts, despite similar access to specialty care.
Santa Clara woman with cystic fibrosis thanks CF Center at Stanford Medicine Children’s Health for successful journey to adult care
Lauren Catron, 26, credits the specialists at the Pulmonary and Cystic Fibrosis Center at Lucile Packard Children’s Hospital Stanford for keeping her alive.
Dietary supplement helps lung function in cystic fibrosis patients, Stanford/Packard study finds
Life expectancy for people with cystic fibrosis has improved dramatically in the last few decades, but those with CF still struggle with a very basic action: breathing easily. However, a new study indicates that a specific dietary supplement might stave off the decline in lung function that characterizes this genetic disease.
‘Lipstick Girl’ Gets Big Birthday Wish: A Life-Saving Double Lung Transplant
Doris Diaz battled with severe cystic fibrosis. After her double lung transplant, Doris is able to take deep breaths for the first time in her life.
Bonded Forever Through the Miracle of Transplant
“There’s nothing like having a bond with someone else who knows exactly what you’re going through.”
