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Recently, Dateline NBC told America a story that seems a bit hard to believe.
Stacy and Jason Bingham of Haines, Oregon, have five beautiful children — Sierra, Megan, Lindsey, Hunter, and Gage. Unfortunately, three of the kids have been hit with cardiomyopathy, a life-threatening disease of the heart muscle that reduces the heart’s ability to pump blood effectively. Two other children are being monitored for heart irregularities.
The result? The eldest, 16-year-old Sierra, has received two heart transplants at Lucile Packard Children’s Hospital Stanford, one in 2006 and a replacement in 2015. Lindsey, 12, had a heart transplant in 2013. Gage, 7, was recently placed on a Heartware ventricular assist device in order to support his failing heart. He is now awaiting placement on the transplant list. Meanwhile, cardiologists are keeping an eye on any potential problems that could be faced by Megan, 14, and Hunter, 9.
On January 17, 2016, Dateline NBC presented their 2nd national broadcast looking at the personal and medical journey the Binghams have faced, along with the many challenges ahead. In addition, the program revealed some of the advanced therapies for heart failure offered by the Heart Center at Lucile Packard Children’s Hospital Stanford and Stanford Medicine Children’s Health.
Learn more
- Information on the Children’s Heart Center at Lucile Packard Children’s Hospital Stanford and Stanford Medicine Children’s Health
- About our pediatric heart transplant program
- What is dilated cardiomyopathy?
- Read about our many pediatric transplant innovations
- How can you help? Give to support the Heart Center and more families like the Binghams.
- Organ donation saves lives. Register to be a donor at https://registerme.org/.
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Authors
- Kelly Frank
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- Robert Dicks
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Thank you for sharing this story and for promoting awareness for cardiomyopathy-a disease that affects so many of us yet is rarely discussed. My love goes out to the Bingham family.
Hi there we spent all summer long and then some. there at the hospital After her fourth open heart. I was sure Nicole would be good for manny years. well I was wrong. Two months later we drove to are day appointment . the pack team came shortly after seeing her results . we stayed for 2 an half months trying to get her well enough to be on a transplant list.The transplant team introduced them self as are new family. We were advised the berlin pump or heart pump may need to be used. Anyway long story short. she got well and we came home .Shell be getting a transplant but not know.. THANK YOU STACY. you helped me figure out a system with Nicoles meds.She was on more than she had ever been on. You told me about some little drawers at target and getting them ready for the week. theres not to manny moms i can ask.well keep running;) it will save your sanity. give a hug to Triston and Steph if u see them love all of you. Fight on Binghams
q draws from target. ….
. keep running 🙂 it keeps you head straight. give a hug to steph and Tristin if you see them
I love the Bingham family, Hi to Hunter, Gage, Lindsey, Sierra and Megan!
Jules
Thank you so much for getting the word out about congenital heart disease. Nicole is 8. she had 4 open heart surgeries. After the fourth one I was sure she was going to be great for manny years to come. I was wrong it was a huge blow to find out nicole would be going on the transplant list and would need the heart wear pump or berlin pump. We were there all summer long and then some with your lovely family. Nicole got well enough to come home. may I ad with more medication than ever before. Stacy thank you for giving me the tips ,like drawing them up for a week and keep them in little drawers from target, very helpful you are a strong courages mama are love is with you. keep running;) it keeps you sane. If you see Stephane or Triston give them a big huge. hope there well.