Josh, a 24-year-old from Discovery Bay, California, has Danon disease—a rare genetic condition that weakens muscles in the body, along with the heart.
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Three Innovations Shorten Heart Transplant Patient’s Wait Time
It started as a simple persistent wet cough, something Eloise (Ellie) McCloskey’s mom, Aubrey, noticed before spring break of second grade, and it quickly escalated from there. After a week in the hospital and an echocardiogram and tests, the family received the news. Ellie had dilated cardiomyopathy—a disease of the heart muscle—and her heart was slowly failing.