Josh, a 24-year-old from Discovery Bay, California, has Danon disease—a rare genetic condition that weakens muscles in the body, along with the heart.
Posts Tagged with
heart failure
What Parents of Children With Heart Disease Asked Us About COVID-19
COVID-19 is daunting for all parents, but even more so for parents of children with a heart condition.
Humbly but Persistently Working Toward a Superhuman Status
With his Stanford PACT team’s help, a young man reaches rare milestone by living with a VAD for 10 years.
New Hope for Children with Aortic Valve Disorders
Innovative Ozaki valve repair technique reverses heart failure and improves functioning.
Pioneers of the Berlin Heart
For a child awaiting a heart transplant, the Berlin Heart offers a bridge to life. Packard Children’s helped bring this innovative device to pediatric patients in the United States, and achieved some of the early milestones for the most vulnerable patients.
Three Days, Three Hearts
In an extremely rare three-day series of transplants in May, three young adults received new hearts at the Children’s Heart Center at Packard Children’s, including an extraordinarily uncommon double-organ heart and liver transplant.
