Wow! I cried when I read this article. I am the mother with 2 children who have PANS/PANDAS/AE due to undiagnosed and untreated gestational lyme + co-infections, heavy metals, and vaccines. We have maxed out almost everything in our retirement, $140,000 + to pay for alternative treatments (IVIG, long term antibiotics, UVBI + ozone, heavy metal chelation, and ONDAMED) and the investments have paid off. We are so grateful that our children are 80% + improved. As a licensed Speech-Language Pathologist working with children with the diagnoses of autism, OCD, and being emotionally disturbed and being a mother who has seen my children change overnight and now heal I know that this condition is NOT RARE. It is rarely diagnosed correctly. Most people do not have access to the treatment that my children have received. I hope and pray that this changes one day as so many children are missing their window of opportunity to heal and function at their best.