The journey to a diagnosis and care/cure is so long and hard - for the caretakers and the patients. Thank you, Dollingers for the funding and esp. for not giving up until you found some answers. Thank you, Dr. Frankovich for believing this is a real, medical issue with a real diagnosis and that treatment can make a difference. Thank you, Stanford for providing resources. Thank you, Jodi Mouratis for using correct terminology that squelches misconceptions about this.