Tara & Dave Dillinger and to everyone who are making this happen, thank you . You are correct in that Drs are quick to prescribe psychotropic medications and label with psychiatric illness this disorder which has sudden onset and roller coaster symptoms. The chronic nature of PANS is debilitating to the child support system as well as the poor child who is suffering immensely. My child has suffered from this illness since last January 2020, he finally had 3 weeks of recovery, and I was sooo happy thinking this was resolved , but last night I saw indicators of it again....he is not the typical PANS patient in that he is older and has an underlying genetic disability ( Potocki Lupski Syndrome) which makes it even more challenging to find a provider who doesn’t just write it off as to be expected :( it is hard to see your child who was pushing the limits and gaining skills to be as independent as possible, driving to and from his job, taking care of simple chores at home, talking in sentences succumb to this and just as hard trying to stand up to uniformed professionals who want to only treat the symptoms and not find and treat the underlying cause ...my sons story is as typical PANS story. My heart goes out to other families, with my sons father dying at an early age (53) and no other support system in place, this 60 year old school teacher has been put through the wringer by systems that don’t work properly for the lower middle class and devastated watching my son endure the torture of this disease .