I am a Respiratory Care Practitioner at Lucile Packard, and this story is so amazing and brought my attention. I also work at a pediatric subacute, and many of the patients there have SMA. The kids there live there, often with minimal to no visits from family. I am their advocate. Is there a way this medication can be available to those kids at subacute? I would like more information and to talk to someone. Thank you