It gives me hope hearing your story. I am a 57 year old mom to 3 sons all born with a disorder which destroyed their heart . My oldest had a heart transplant February 26, 2012. My middle son had a heart transplant on February 6th 2018 . My youngest son is on meds to slow progression and also as a pacemaker and defibrillator . He will eventually be put on the transplant list when his heart is no longer able to do its job . I pray everyday that they will get to live a long life. Hearing your story makes me think they can maybe do just that. Thank you for sharing.