Watching your story on MSNBC tonight the Thanksgiving holiday weekend. Amazing courage in the face of such adversities, you are all heroes . Keep your chins up! I hope someday the cause of this illness in otherwise health well cared for children with no history of heart disease in the family is found. I lost my father when I was 4 to a "Rheumatic Heart", years later my mom commented to me about how different our lives would have been if today's technology was available back then. What a word "if" the worst in our language.