Thank you. Thank you...I am one of six children. Five of us have EB simplex. It was not until my first son was born in 1978 with EB that my sister went to a local dermatologist seeking an answer as to what we have. I went on to have another son who was spared. My sisters first child was ok but her second a girl inherited the disorder. My son has two children . The first boy is five and fine, the second will be one in May and they just found his first blister on the big toe he uses to push off with when he crawls. My heart is breaking, I realize it is simplex but the days of foot soaks and breaking in shoes and limitations have risen from a place in my soul they were deeply buried. My son and his wife are stoic yet I know what they are feeling inside. I know what lies ahead and my heart is breaking for them too. They are vegan and Evan is being breast fed and I pray their advocacy on nutrition will be a great benefit to him. When I read about Heal EB I just felt the need to look into your works. Back in the 80's we had a geniologist from Thomas Jefferson Hospital Angela Christiano test our family to find the gene which causes our mutation . It was found but funding stopped and we never went any further. When I read about the bullying part it brought me back to the shame I felt as a child, mother and adult about our rare disorder. God bless the children who have dystrophic, I can't even imagine what their families are feeling. It's people like you who create the awareness and funding begins again to research for a cure. I hope one day it can be found. Sincerely, Maryann, Bayonne NJ