I am also an adult w congenital heart disease, working in a PICU that is a huge centre for cardiac surgery. I was appalled when I was pregnant at the misinformation amongst medical staff treating me, and the level of panic held about how I would respond to the changes- particularly after birth. The fights I had with the anaesthetic staff trying explain why I needed my arterial line in my right arm! I hope for all our sakes that the expertise catches up to us all growing older!