My daughter was born with the same as Jimmy Kimmels son. She is now going to be 26 in December and is having her aortic valve replaced with a mechanical valve and also having a pigs valve put in as she was born with no pulmonary valve. These procedures will be done at the end of November in Philadelphia. She has oboma care with a high deductible. She will be out of work for at least 2 months. And their is nothing she can collect as a income during that time in the state of Pa. Her and her boyfriend recently bought a home. I don’t understand how they expect at such young ages to have a large bank account to cover all these bills while being out of work and not being able to collect anything. I can only imagine the cost of her insurance after the end of this year as she will no longer be on our insurance thru oboma care As with having our own business and to get insurance was impossible due to her defect and other issues with my husband. And yet she will as with others need follow up Heath care the rest of her life. In the end if we had to sell our home to get her the care she needs that is what we would do. A home we could rebuild a child you cannot replace.