10-year-old Chris Formaker, like many kids his age, is a young sports fanatic. An avid basketball player, he loves the Golden State Warriors and can spew out player statistics at any moment. But physiologically, Chris is very unique.
Chris’s journey began in January of 2015. At the time, he was active in basketball, soccer and baseball. When he began experiencing knee pain and swelling, Chris’s parents assumed it was due to a sports-related injury and scheduled an appointment with his pediatrician near their home in Elk Grove, CA.
“I picked Chris up from school on a Thursday afternoon for the appointment, and he didn’t return to school for a year,” his father, Jesse Formaker, said.
Chris was diagnosed with osteosarcoma — cancer of the bone — in his left femur. Osteosarcoma is the most common type of bone cancer among children, typically occurring in the arms, legs or pelvis. Treatment can include chemotherapy, radiation therapy, amputation and other surgeries.
Within a month of his diagnosis, Chris had begun chemotherapy and learned that he would require surgery to remove the malignant tumor in his leg. Doctors presented three surgical options: a series of limb salvage procedures, an above-the-knee amputation or a rarely performed complex rotationplasty procedure.
Rotationplasty is an alternative form of amputation in which the central portion of the leg is removed as surgeons carefully extract the bone tumor present within the femur along with sections of the tibia. In its place, the patient’s foot and ankle, turned 180 degrees, are attached to the upper thigh. Surgeons reattach skin and muscle to position the patient’s backwards-facing foot at equal height to the opposite remaining knee. Once healed, this serves as a new knee joint and can be comfortably fitted with a prosthetic leg.
“Aesthetically, there’s no question — rotationplasty looks funny,” said Larry Rinsky, MD, chief emeritus of pediatric orthopedic surgery at Stanford Children’s Health. “But it has many advantages, particularly for kids like Chris who want to maintain mobility and continue playing sports. It is truly a long-term solution to a difficult problem.” In addition to allowing patients to resume an active lifestyle, other advantages of rotationplasty include the absence of phantom pain that commonly occurs in a traditional amputation and the fact that the new knee joint is able to bear a significant amount of weight.
With support from Chris’s oncology team at Kaiser Permanente in Sacramento, the family conducted thorough research of each surgical option and presented the information to Chris, sharing videos and other documentation of each possible outcome. “Our goal was to have him make the decision because it’s going to be something he’s going to live with his whole life,” Chris’s father explained.
When Chris came across a series of YouTube videos of rotationplasty patients playing basketball post-surgery, his answer became clear: “Who cares how it looks? I want that one [rotationplasty].”
Soon after, the family was referred to Dr. Rinsky at the Children’s Orthopedic and Sports Medicine Center at Lucile Packard Children’s Hospital Stanford — one of a select few surgeons in the country who perform rotationplasty surgery. Throughout his career, Dr. Rinsky has performed 10 rotationplasty surgeries, among the most completed by one surgeon. According to Dr. Rinksy, the Formakers were ideal candidates for rotationplasty. “They were unique in that they did so much research ahead of time, they were well informed, they knew the advantages and they understood the disadvantages as far as the appearance. They really just took the ball and ran with it,” he said.
Ran with it they did. Six months after surgery, Chris was both concluding chemotherapy treatment for his cancer and beginning to bear weight on his new leg. Working with Gary Berke, MS, CP, an adjunct clinical assistant professor of orthopedic surgery at Stanford University School of Medicine, Chris was fitted for a prosthetic leg that fit over his new knee joint, allowing him to return to the sports that were such a part of his identity.
Less than two months after Chris received his prosthetic leg, his family brought him to a basketball clinic for amputees. Their plan was for him to observe the game and get idea of what he would be able to do once he made a full recovery. But Chris had another idea. With his arms outstretched toward his father, crutches in hand, he said, “Hold these, Dad.”
“He was in such pain. He could barely walk. He would fall down and I’d have to go pick him up,” Jesse explained with a laugh. “But he was determined and the next thing we knew he was out there dribbling and shooting like old times.”
Today, Chris is playing basketball in the same recreational basketball league he was part of before his diagnosis — the Cosumnes CSD Junior NBA basketball league. Chris’s family says that as a result of being able to play sports again, he pushes himself to achieve. “The day Chris was diagnosed with osteosarcoma was the worst moment of our lives,” Jesse said. “You never want to imagine going through that, but we didn’t get to make that choice. We did, however, get to make the choice for Chris to have a rotationplasty, and for that we could not be more grateful.”
- Alisha Thomas
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